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200 | all right okay | all right okay |
201 | it helps my pain | it helps my pain |
202 | are you taking that regularly | are you that regularly |
203 | id say so | id say so |
204 | have you noticed any stomach upset with that | have you noticed any stomach with that |
205 | i mean well i suppose i have to have this abdominal pain in my tummy so i dont know could that be could be connected to that | i well suppose i have to have this abdominal pain in my tummy so i know could that be could be connected to that |
206 | yeah possibly so we do find people here on long term nonsteroidal medications like diclofenac that kind of upset your stomach especially if youre not taking omeprazole or a medication like that with it so we need to be might need to address that do you have any insight or ideas about what might be causing your symptoms preferably the diarrhoea and the weight loss | yeah possibly do find people here on long term nonsteroidal medications like diclofenac that kind of upset your stomach especially if youre not taking or a medication like that with it so we need be might to address that do you have any insight or ideas about what might be your symptoms preferably the the weight loss |
207 | and well i suppose i just assumed thats my crohns with that was being watery but i dont know about but do you think it could be anything else | and well i suppose i just assumed thats crohns with that was being watery but i dont know about but do you think it could be else |
208 | so yeah i think theres a few different things it could be i noticed that youve not had a colonoscopy for quite some time in fact not said to you shortly after you were diagnosed so we might need to look at repeating that i think in the first instance will get some blood tests off to check in inflammatory markers and we need to send some samples of your stool off to make sure theres no infection and also send off a special stool test called fecal calprotectin and thats to look for inflammation in your bowel that might be related to the crohns disease i think depending on what those are well maybe decide on whether you need another camera test up up the tail end to have a look at the lining of the bowel so i think thats thats what we are doing just at that the moment how does that sound to you | so yeah i think theres a few different things it could be i noticed that youve not had a colonoscopy quite some time in fact not said to shortly after you were diagnosed so we need to look at repeating that i think in the first instance will some blood tests off check inflammatory markers and we need to send samples of stool off to make sure theres no infection and send off a special stool test called fecal and thats to for in your bowel that might be related to the crohns disease i think on what well maybe decide on whether you need camera test up tail end to a look at the of the bowel so i think thats thats what are doing just at that the how does that sound to you |
209 | yeah i mean yes yeah thats thats all right yeah i just yeah i didnt really think could be getting all these tests and things quite a lot to take in | i mean yes yeah thats thats all right yeah i just yeah i didnt really think could be getting all these tests and things quite a lot to take in |
210 | of course | of |
211 | but yeah i understand | but yeah i understand |
212 | any other questions | any other questions |
213 | yeah do you think i need to change my medication to something else | yeah do you think i need to change my medication to else |
214 | so one of the things we can do is to check the level of the medication in your blood called the adalimumab profile or checking the antibodies and the level of the drug but at the moment i wouldnt change you from your adalimumab just until weve got a bit more information about whats going on | so one of the things we can do is to check the level the medication in your blood called the adalimumab profile or checking the antibodies and the of the drug but at the i wouldnt change from your adalimumab just until weve got a bit more information about whats going on |
215 | okay you think i might need more surgery | okay you i might need more surgery |
216 | well again it depends a little bit on the investigations we might you know depending on what they show we might need to go on and get mri scan of your bowel just to have a look and make sure there arent any other points of narrowing in the bowel like you had last time if thats the case then we might need to look at surgery but thats a lot further down the line for a moment okay | well again it depends a bit on the investigations might you know depending on they show we might need to go on and get mri scan of bowel just to have look and make sure there arent other points of narrowing in the bowel like you had last time thats the then we might need to look at surgery but thats a lot further down the line for a moment okay |
217 | thank you | thank you |
218 | hello my names amy i am one of the gastroenterology doctors can i take your name | my names amy i am one of the gastroenterology doctors can i take your name |
219 | its rachel brown | its rachel |
220 | okay nice to meet you rachel so tell me why youve been referred to the gastroenterology clinic today | okay to meet you so tell me why youve been referred to the gastroenterology clinic |
221 | so for the past three months ive had a lot of diarrhoea and sometimes its quite bloody as well and its scaring me now | so for the past three months ive had a lot of diarrhoea sometimes bloody as well and its scaring me now |
222 | oh and have you ever had anything like that in the past | oh have you had anything like that in the past |
223 | over the past few years id say its been a bit iffy and intermittently having diarrhoea but its been worse over the past three months | over the past few years id say its been a bit iffy intermittently having diarrhoea but its been worse over the past three months |
224 | okay and that you are passing blood each time | okay and that you are passing blood each time |
225 | most times and its mixed with the stool and sometimes i see clots and things as well | most times and its with the stool and sometimes i see and things as well |
226 | okay have you noticed any mucus in your bowel motions | okay have you noticed any mucus in your bowel motions |
227 | yeah theres a lot of mucus | yeah theres a lot of mucus |
228 | and does that been the case for quite a few months as well | and does that been the case for a few months as |
229 | okay and hows your weight been | okay and hows your weight been |
230 | so ive lost quite a lot of weight recently my my parents are really worried about that | so ive lost a lot of weight my my parents are really worried about that |
231 | okay are you eating well | okay are you eating well |
232 | id say im eating well but i just i just dont seem to keep my weight up | say im eating well but i just i just dont seem to keep my weight up |
233 | and any abdominal pain or discomfort | any abdominal pain or discomfort |
234 | yeah i get quite a lot of abdominal pain its quite crampy just before i need to open my bowels | yeah i get quite a lot of abdominal pain its quite crampy just before i need to open my bowels |
235 | okay right and has the pain got worse do you think or stayed about the same | okay has the pain worse do you think stayed the same |
236 | i think its stayed about the same | i think its stayed about the same |
237 | and how often are you moving your bowels each day | and how are you moving your bowels each day |
238 | about six times a day id say | about six times a day id say |
239 | and is that been the case overnight as well or just during the day | and is that been the case overnight as well just during the day |
240 | id say usually have to get up about once a night | id say usually get up once a night |
241 | to go to the toilet | to go to the toilet |
242 | and any vomiting or problems with swallowing | and any vomiting problems with |
243 | and any other medical conditions that you have | and any other conditions you have |
244 | okay you are on any medications from your gp | okay you are any medications your gp |
245 | any allergies | any allergies |
246 | not that i know of | not that i know of |
247 | no okay and any family history of anything | no okay and any family history of anything |
248 | yeah my moms got ulcerative colitis | yeah my moms got ulcerative colitis |
249 | okay and is she well with that or is she on medications | and she well with that is she on medications |
250 | okay and so whats your understanding of of whats been going on so far | okay and so whats your understanding of of been on far |
251 | so im worried that ive got colitis as well | so im worried that ive got as well |
252 | does your moms experience make you more concerned about that or | does your make you concerned about that or |
253 | a little bit because she sometimes has a flare ups | a little bit because she sometimes has a flare ups |
254 | and that could be quite unwell with that so im quite worried but thats whats going to happen to me as well | and that could be quite unwell with so im quite worried but thats whats going to to me as well |
255 | okay so at the moment we need to take some stool cultures from you i think youve had some sent but we need to send a couple more just to exclude any infection we also need to arrange an urgent colonoscopy for you so that im sure your mom have had one of those before so its basically a camera test it goes into your bowel and has a look and we take photographs and take biopsies to try and diagnose you with what we think is inflammatory bowel disease okay there are a couple of different types of inflammatory bowel disease so one is called ulcerative colitis like your mom has and the other one is called crohns disease and so they are similar in many ways but there are key differences in terms of how we manage people so thats what well do at the moment for today well start you on something called pentesia which is to try and help reduce any inflammation in the bowel and then once we get a formal diagnosis from biopsies and things well hopefully aim to start you on some steroids to reduce the inflammation okay does that sound okay | okay so at the moment we need to take some stool cultures from you i think youve had some sent we need to send a couple more just to exclude any infection we also need to arrange an urgent colonoscopy for you so that im your have one of those before so its basically a camera goes into your bowel and has a look and we and take biopsies to try and diagnose you with what we is inflammatory bowel disease a couple of different types of inflammatory bowel disease so one is called ulcerative colitis like your has and the other one is called crohns disease so they are similar in many ways but are key differences in terms of how we manage people what well do at the moment for today well you on something called pentesia which is to try help reduce any inflammation in the bowel and then once we get a formal diagnosis from and well hopefully aim to start you on some steroids to the inflammation okay does that sound okay |
256 | yeah that sounds okay | that okay |
257 | do you have any questions about all of that or | do you have questions about all that or |
258 | so do i have to be on medications forever | so do i have to be on medications forever |
259 | so its very dependent on the patient or on the person who some people respond very well to initial therapy and they might remain well for years with a normal bowel habit and will kind of see you or speak to you from clinic you know maybe every six months for a year to see how youre getting on and decides if you can come off medication so some people stay on medication lifelong and some people manage to come off it | so its very dependent on the patient or on the person who some people respond very well to initial therapy and they might well for years with a normal bowel habit and will kind of you or speak to you from clinic you know maybe every six months for a year to see how youre getting on and decides if you can come off medication so some people stay on medication lifelong and some people manage to come it |
260 | okay that sounds fine | okay sounds fine |
261 | okay great | okay great |
262 | so ill go and arrange your series of investigations | ill go and arrange your series of investigations |
263 | hello my names amy im one of the gastroenterology doctors at the ibd clinic can i take your name | hello my names amy im of the gastroenterology doctors at the ibd clinic can i take your name |
264 | its rachel brown | its rachel brown |
265 | nice to meet you rachel so i know that youre quite well known to our clinic so we see every year or so but were seeing you slightly earlier than usual can you tell me why that is whats been going on | nice to meet you rachel so i know that youre quite well known to our clinic so we see year or so were seeing you slightly earlier than usual can you tell me why that is whats been on |
266 | so for the past kind of probably two months i noticed my bowels are going more frequently and its lot more watery than it used to be | so for the past kind of probably two noticed my bowels are going frequently and its lot more watery than it used to be |
267 | i havent noticed any blood but just the frequency is starting to become quite concerning | i havent noticed any blood but just the frequency is starting to become quite concerning |
268 | okay and if so have you noticed any blood at all or | okay and if so have you noticed blood at all or |
269 | no no blood but ive just been feeling very tired all the time quite lethargic | no no blood but ive been feeling very tired all the quite lethargic |
270 | okay and have you been to see your gp about any of this | okay and have you been to gp about any this |
271 | okay if you had any blood check recently or | okay if you had any blood check or |
272 | okay and so just tell me i know you are on adalimumab and how it has been for you | and so just tell me i you are on adalimumab and how it has been for you |
273 | so initially i felt that the adalimumab really made a big improvement kind of get my life back yeah now its i think its wearing off | so initially i felt that the really made a improvement kind of get my life back yeah now its i think its wearing off |
274 | okay and are you pretty good at taking it | okay and are you pretty good at taking it |
275 | yeah im good at taking it i always take it at every fortnight | yeah im good at it i always take it at every fortnight |
276 | okay and any abdominal pain | okay any abdominal pain |
277 | yeah i do get some pain but ive had that for quite a long time now | yeah do get some pain but ive had that for quite a time now |
278 | its been getting any worse recently | its been getting any worse recently |
279 | okay and any other medical conditions that you have | okay and any other medical conditions that you have |
280 | so ive got arthritis and hay fever and asthma as well | so ive got arthritis and hay and asthma as well |
281 | okay and are you on any medications for those things | and are you on any medications for those things |
282 | just ansaid for my arthritis | just ansaid for my arthritis |
283 | okay are you taking those regularly or | okay are you taking those regularly or |
284 | just kind of as when i need them i dont really like taking them | just kind of as when i need them i dont really like taking them |
285 | sure okay and do you have any sort of questions at the moment as to what might be going on or | sure and do you have any sort of questions at moment as to be going on or |
286 | what do you think is causing my symptoms of the moment | what do you think is causing my symptoms of the moment |
287 | so theres a few different things that could be going on one of them could be that as you sort of alluded to yourself that you might be coming your bodys not responding as well to the adalimumab so one of the things that well do today is check the levels of the drug in your body to make sure that your body is handling it as it should be it could also be that your crohns disease is a bit more active than usual so one of the things that we can do for that is check up fecal calprotectin which you will probably have had done before | so theres a few things that be going on one of them could be that as you sort of alluded to yourself that you might be coming your not well to the adalimumab so one of things that well do today is check the levels of drug in your body to make sure that your body is handling it as it should be it could be that your crohns disease is a bit more active than usual so one of the things that we can do for is check up fecal calprotectin which you will probably have had done before |
288 | and thats just a stool test to check the inflammation we also need to send some samples off to make sure theres no infection there as well and well do some bloods to make sure you are not a knee make or needing any sort of a placement of your electrolytes okay what how does that sound to you | and thats just a stool test to check the inflammation we also need to send some samples off to sure no infection there as well and well do some bloods to make sure you are not a make or needing any sort of a placement of your electrolytes okay what how that sound to you |
289 | you know that sounds fine im just worried that ill need to change my medication and ive been getting on quite well with the adalimumab | you know that sounds fine im just worried that ill need to change my medication and ive been getting on quite well with the adalimumab |
290 | so just a bit worried about that | so just a bit worried about that |
291 | must be a bit disappointing when its been working so well | must be a bit when its been working so well |
292 | okay i think well first of all get these basic investigations off it might be that we need to go on and get some more imaging of your abdomen in terms of mri scans or ct scans and also do a camera test or a colonoscopy to have a look at the tail end but well start with the basic investigations first and then we can decide about medication after does that sound okay | okay i think well first of all get these basic investigations off it might be that we need to go on some more imaging of your abdomen in terms of mri scans or ct scans and also do a camera test or a to have a look at the tail end but well start with basic investigations first and then we can decide about after does that okay |
293 | yeah that sounds fine just also worried that i might need more surgery again | yeah that sounds fine just also worried that i might need more surgery again |
294 | okay what what makes you worried about needing surgery in particular | okay what what makes you worried needing in particular |
295 | just took me quite a long time to recover last time | just took me quite a long time to recover last time |
296 | i just dont want more surgery | i just dont want more surgery |
297 | well it usually is a last resort for the people with inflammatory bowel disease so well do what we can with medication and hopefully you respond there are things we can do with your adalimumab to increase its dose or increase the frequency as well so there there are definitely other options other than surgery at the moment | well it usually is a last resort for the people with inflammatory bowel disease so well what we can with medication and hopefully you respond are things can do with adalimumab to increase its dose or increase the frequency as well so there there are definitely other options other than surgery at the moment |
298 | yeah that sounds fine thank you | yeah that sounds fine thank you |
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