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all right okay
all right okay
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it helps my pain
it helps my pain
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are you taking that regularly
are you that regularly
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id say so
id say so
204
have you noticed any stomach upset with that
have you noticed any stomach with that
205
i mean well i suppose i have to have this abdominal pain in my tummy so i dont know could that be could be connected to that
i well suppose i have to have this abdominal pain in my tummy so i know could that be could be connected to that
206
yeah possibly so we do find people here on long term nonsteroidal medications like diclofenac that kind of upset your stomach especially if youre not taking omeprazole or a medication like that with it so we need to be might need to address that do you have any insight or ideas about what might be causing your symptoms preferably the diarrhoea and the weight loss
yeah possibly do find people here on long term nonsteroidal medications like diclofenac that kind of upset your stomach especially if youre not taking or a medication like that with it so we need be might to address that do you have any insight or ideas about what might be your symptoms preferably the the weight loss
207
and well i suppose i just assumed thats my crohns with that was being watery but i dont know about but do you think it could be anything else
and well i suppose i just assumed thats crohns with that was being watery but i dont know about but do you think it could be else
208
so yeah i think theres a few different things it could be i noticed that youve not had a colonoscopy for quite some time in fact not said to you shortly after you were diagnosed so we might need to look at repeating that i think in the first instance will get some blood tests off to check in inflammatory markers and we need to send some samples of your stool off to make sure theres no infection and also send off a special stool test called fecal calprotectin and thats to look for inflammation in your bowel that might be related to the crohns disease i think depending on what those are well maybe decide on whether you need another camera test up up the tail end to have a look at the lining of the bowel so i think thats thats what we are doing just at that the moment how does that sound to you
so yeah i think theres a few different things it could be i noticed that youve not had a colonoscopy quite some time in fact not said to shortly after you were diagnosed so we need to look at repeating that i think in the first instance will some blood tests off check inflammatory markers and we need to send samples of stool off to make sure theres no infection and send off a special stool test called fecal and thats to for in your bowel that might be related to the crohns disease i think on what well maybe decide on whether you need camera test up tail end to a look at the of the bowel so i think thats thats what are doing just at that the how does that sound to you
209
yeah i mean yes yeah thats thats all right yeah i just yeah i didnt really think could be getting all these tests and things quite a lot to take in
i mean yes yeah thats thats all right yeah i just yeah i didnt really think could be getting all these tests and things quite a lot to take in
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of course
of
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but yeah i understand
but yeah i understand
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any other questions
any other questions
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yeah do you think i need to change my medication to something else
yeah do you think i need to change my medication to else
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so one of the things we can do is to check the level of the medication in your blood called the adalimumab profile or checking the antibodies and the level of the drug but at the moment i wouldnt change you from your adalimumab just until weve got a bit more information about whats going on
so one of the things we can do is to check the level the medication in your blood called the adalimumab profile or checking the antibodies and the of the drug but at the i wouldnt change from your adalimumab just until weve got a bit more information about whats going on
215
okay you think i might need more surgery
okay you i might need more surgery
216
well again it depends a little bit on the investigations we might you know depending on what they show we might need to go on and get mri scan of your bowel just to have a look and make sure there arent any other points of narrowing in the bowel like you had last time if thats the case then we might need to look at surgery but thats a lot further down the line for a moment okay
well again it depends a bit on the investigations might you know depending on they show we might need to go on and get mri scan of bowel just to have look and make sure there arent other points of narrowing in the bowel like you had last time thats the then we might need to look at surgery but thats a lot further down the line for a moment okay
217
thank you
thank you
218
hello my names amy i am one of the gastroenterology doctors can i take your name
my names amy i am one of the gastroenterology doctors can i take your name
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its rachel brown
its rachel
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okay nice to meet you rachel so tell me why youve been referred to the gastroenterology clinic today
okay to meet you so tell me why youve been referred to the gastroenterology clinic
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so for the past three months ive had a lot of diarrhoea and sometimes its quite bloody as well and its scaring me now
so for the past three months ive had a lot of diarrhoea sometimes bloody as well and its scaring me now
222
oh and have you ever had anything like that in the past
oh have you had anything like that in the past
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over the past few years id say its been a bit iffy and intermittently having diarrhoea but its been worse over the past three months
over the past few years id say its been a bit iffy intermittently having diarrhoea but its been worse over the past three months
224
okay and that you are passing blood each time
okay and that you are passing blood each time
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most times and its mixed with the stool and sometimes i see clots and things as well
most times and its with the stool and sometimes i see and things as well
226
okay have you noticed any mucus in your bowel motions
okay have you noticed any mucus in your bowel motions
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yeah theres a lot of mucus
yeah theres a lot of mucus
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and does that been the case for quite a few months as well
and does that been the case for a few months as
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okay and hows your weight been
okay and hows your weight been
230
so ive lost quite a lot of weight recently my my parents are really worried about that
so ive lost a lot of weight my my parents are really worried about that
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okay are you eating well
okay are you eating well
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id say im eating well but i just i just dont seem to keep my weight up
say im eating well but i just i just dont seem to keep my weight up
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and any abdominal pain or discomfort
any abdominal pain or discomfort
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yeah i get quite a lot of abdominal pain its quite crampy just before i need to open my bowels
yeah i get quite a lot of abdominal pain its quite crampy just before i need to open my bowels
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okay right and has the pain got worse do you think or stayed about the same
okay has the pain worse do you think stayed the same
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i think its stayed about the same
i think its stayed about the same
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and how often are you moving your bowels each day
and how are you moving your bowels each day
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about six times a day id say
about six times a day id say
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and is that been the case overnight as well or just during the day
and is that been the case overnight as well just during the day
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id say usually have to get up about once a night
id say usually get up once a night
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to go to the toilet
to go to the toilet
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and any vomiting or problems with swallowing
and any vomiting problems with
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and any other medical conditions that you have
and any other conditions you have
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okay you are on any medications from your gp
okay you are any medications your gp
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any allergies
any allergies
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not that i know of
not that i know of
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no okay and any family history of anything
no okay and any family history of anything
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yeah my moms got ulcerative colitis
yeah my moms got ulcerative colitis
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okay and is she well with that or is she on medications
and she well with that is she on medications
250
okay and so whats your understanding of of whats been going on so far
okay and so whats your understanding of of been on far
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so im worried that ive got colitis as well
so im worried that ive got as well
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does your moms experience make you more concerned about that or
does your make you concerned about that or
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a little bit because she sometimes has a flare ups
a little bit because she sometimes has a flare ups
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and that could be quite unwell with that so im quite worried but thats whats going to happen to me as well
and that could be quite unwell with so im quite worried but thats whats going to to me as well
255
okay so at the moment we need to take some stool cultures from you i think youve had some sent but we need to send a couple more just to exclude any infection we also need to arrange an urgent colonoscopy for you so that im sure your mom have had one of those before so its basically a camera test it goes into your bowel and has a look and we take photographs and take biopsies to try and diagnose you with what we think is inflammatory bowel disease okay there are a couple of different types of inflammatory bowel disease so one is called ulcerative colitis like your mom has and the other one is called crohns disease and so they are similar in many ways but there are key differences in terms of how we manage people so thats what well do at the moment for today well start you on something called pentesia which is to try and help reduce any inflammation in the bowel and then once we get a formal diagnosis from biopsies and things well hopefully aim to start you on some steroids to reduce the inflammation okay does that sound okay
okay so at the moment we need to take some stool cultures from you i think youve had some sent we need to send a couple more just to exclude any infection we also need to arrange an urgent colonoscopy for you so that im your have one of those before so its basically a camera goes into your bowel and has a look and we and take biopsies to try and diagnose you with what we is inflammatory bowel disease a couple of different types of inflammatory bowel disease so one is called ulcerative colitis like your has and the other one is called crohns disease so they are similar in many ways but are key differences in terms of how we manage people what well do at the moment for today well you on something called pentesia which is to try help reduce any inflammation in the bowel and then once we get a formal diagnosis from and well hopefully aim to start you on some steroids to the inflammation okay does that sound okay
256
yeah that sounds okay
that okay
257
do you have any questions about all of that or
do you have questions about all that or
258
so do i have to be on medications forever
so do i have to be on medications forever
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so its very dependent on the patient or on the person who some people respond very well to initial therapy and they might remain well for years with a normal bowel habit and will kind of see you or speak to you from clinic you know maybe every six months for a year to see how youre getting on and decides if you can come off medication so some people stay on medication lifelong and some people manage to come off it
so its very dependent on the patient or on the person who some people respond very well to initial therapy and they might well for years with a normal bowel habit and will kind of you or speak to you from clinic you know maybe every six months for a year to see how youre getting on and decides if you can come off medication so some people stay on medication lifelong and some people manage to come it
260
okay that sounds fine
okay sounds fine
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okay great
okay great
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so ill go and arrange your series of investigations
ill go and arrange your series of investigations
263
hello my names amy im one of the gastroenterology doctors at the ibd clinic can i take your name
hello my names amy im of the gastroenterology doctors at the ibd clinic can i take your name
264
its rachel brown
its rachel brown
265
nice to meet you rachel so i know that youre quite well known to our clinic so we see every year or so but were seeing you slightly earlier than usual can you tell me why that is whats been going on
nice to meet you rachel so i know that youre quite well known to our clinic so we see year or so were seeing you slightly earlier than usual can you tell me why that is whats been on
266
so for the past kind of probably two months i noticed my bowels are going more frequently and its lot more watery than it used to be
so for the past kind of probably two noticed my bowels are going frequently and its lot more watery than it used to be
267
i havent noticed any blood but just the frequency is starting to become quite concerning
i havent noticed any blood but just the frequency is starting to become quite concerning
268
okay and if so have you noticed any blood at all or
okay and if so have you noticed blood at all or
269
no no blood but ive just been feeling very tired all the time quite lethargic
no no blood but ive been feeling very tired all the quite lethargic
270
okay and have you been to see your gp about any of this
okay and have you been to gp about any this
271
okay if you had any blood check recently or
okay if you had any blood check or
272
okay and so just tell me i know you are on adalimumab and how it has been for you
and so just tell me i you are on adalimumab and how it has been for you
273
so initially i felt that the adalimumab really made a big improvement kind of get my life back yeah now its i think its wearing off
so initially i felt that the really made a improvement kind of get my life back yeah now its i think its wearing off
274
okay and are you pretty good at taking it
okay and are you pretty good at taking it
275
yeah im good at taking it i always take it at every fortnight
yeah im good at it i always take it at every fortnight
276
okay and any abdominal pain
okay any abdominal pain
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yeah i do get some pain but ive had that for quite a long time now
yeah do get some pain but ive had that for quite a time now
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its been getting any worse recently
its been getting any worse recently
279
okay and any other medical conditions that you have
okay and any other medical conditions that you have
280
so ive got arthritis and hay fever and asthma as well
so ive got arthritis and hay and asthma as well
281
okay and are you on any medications for those things
and are you on any medications for those things
282
just ansaid for my arthritis
just ansaid for my arthritis
283
okay are you taking those regularly or
okay are you taking those regularly or
284
just kind of as when i need them i dont really like taking them
just kind of as when i need them i dont really like taking them
285
sure okay and do you have any sort of questions at the moment as to what might be going on or
sure and do you have any sort of questions at moment as to be going on or
286
what do you think is causing my symptoms of the moment
what do you think is causing my symptoms of the moment
287
so theres a few different things that could be going on one of them could be that as you sort of alluded to yourself that you might be coming your bodys not responding as well to the adalimumab so one of the things that well do today is check the levels of the drug in your body to make sure that your body is handling it as it should be it could also be that your crohns disease is a bit more active than usual so one of the things that we can do for that is check up fecal calprotectin which you will probably have had done before
so theres a few things that be going on one of them could be that as you sort of alluded to yourself that you might be coming your not well to the adalimumab so one of things that well do today is check the levels of drug in your body to make sure that your body is handling it as it should be it could be that your crohns disease is a bit more active than usual so one of the things that we can do for is check up fecal calprotectin which you will probably have had done before
288
and thats just a stool test to check the inflammation we also need to send some samples off to make sure theres no infection there as well and well do some bloods to make sure you are not a knee make or needing any sort of a placement of your electrolytes okay what how does that sound to you
and thats just a stool test to check the inflammation we also need to send some samples off to sure no infection there as well and well do some bloods to make sure you are not a make or needing any sort of a placement of your electrolytes okay what how that sound to you
289
you know that sounds fine im just worried that ill need to change my medication and ive been getting on quite well with the adalimumab
you know that sounds fine im just worried that ill need to change my medication and ive been getting on quite well with the adalimumab
290
so just a bit worried about that
so just a bit worried about that
291
must be a bit disappointing when its been working so well
must be a bit when its been working so well
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okay i think well first of all get these basic investigations off it might be that we need to go on and get some more imaging of your abdomen in terms of mri scans or ct scans and also do a camera test or a colonoscopy to have a look at the tail end but well start with the basic investigations first and then we can decide about medication after does that sound okay
okay i think well first of all get these basic investigations off it might be that we need to go on some more imaging of your abdomen in terms of mri scans or ct scans and also do a camera test or a to have a look at the tail end but well start with basic investigations first and then we can decide about after does that okay
293
yeah that sounds fine just also worried that i might need more surgery again
yeah that sounds fine just also worried that i might need more surgery again
294
okay what what makes you worried about needing surgery in particular
okay what what makes you worried needing in particular
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just took me quite a long time to recover last time
just took me quite a long time to recover last time
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i just dont want more surgery
i just dont want more surgery
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well it usually is a last resort for the people with inflammatory bowel disease so well do what we can with medication and hopefully you respond there are things we can do with your adalimumab to increase its dose or increase the frequency as well so there there are definitely other options other than surgery at the moment
well it usually is a last resort for the people with inflammatory bowel disease so well what we can with medication and hopefully you respond are things can do with adalimumab to increase its dose or increase the frequency as well so there there are definitely other options other than surgery at the moment
298
yeah that sounds fine thank you
yeah that sounds fine thank you